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DATA & RESEARCH MANAGERWorld Accord

 

DATA & RESEARCH MANAGER / GESTIONNAIRE, COLLECTES de DONNÉES et RECHERCHES


The World Federation of Hemophilia (WFH) is an international not-for-profit organization that provides global leadership to save an improve lives for people with hemophilia and other inherited bleeding disorders. Established in 1963, the WFH works with member organizations in 134 countries as well as through a network of international volunteers and healthcare providers to improve and sustain care and "Treatment For All" around the world.

The WFH is presently seeking a knowledgeable, highly effective and results-oriented Data and Research Manager to manage multiple international data collection efforts including the WFH Annual Global Survey, as well as participate in the design and implementation of the World Bleeding Disorders Registry and other WFH research projects central to achieving the World Federation of Hemophilia’s mission of Treatment for All.


Reporting to:   Director, Research & Public Policy
Type of position:   level 8, regular position, full-time
Location:   Montreal – downtown

Start date:   IMMEDIATE (by latest September 2017)

MAIN DUTIES & RESPONSIBILITIES -

  • Ensure the smooth and efficient day-to-day operation of research and data collection activities
  • Manage the planning, organization and production of the WFH’s Annual Global Survey; oversee the data entry, validation and query processes
  • Coordinate data collection efforts in collaboration with an international network of treatment centers and national member organizations
  • Perform data analytics, identify trends, track progress, and prepare reports and manuscripts as needed, for data collection and research efforts at the WFH
  • Employ advanced data visualization techniques for the effective communication of WFH data
  • Participate in the development of research designs, data collection methods, and strategies for data management and reporting
  • Develop and implement training programs and workshops on data collection and research methodology for hemophilia treatment centers (HTCs) and/or national member organizations (NMOs)
  • Oversee the design, creation and revision of research and data collection instruments, training materials, and other documentation to ensure quality data that correlates with program objectives
  • Represent the WFH and Research & Public Policy Department at International conferences and meetings to promote, en